6.13.2015

Not On the To-Do List

So yesterday's activity was not originally on my summer to-do list. Yeah....no it wasn't. If you've been following me for awhile then ya know I have struggled with some health issues over the past 3 years. I've had more blood drawn than I think is in my body to begin with, more crazy tests, peed in a tiny cup 100 million times, more blood pricks, seen more doctors, paid more co-pays, had more seeing of my body than I care to discuss until last week. When upon my sweet hubby's insistence went to see ANOTHER doctor. Another GYN. And she looked into my crying eyes and with the most calming voice said, "I want to go in and see what is going on. I personally think you have endometriosis." WHAT? What is that? I had kids...I thought that meant you can't have kids.

Of course Billy was out of town so we talked shortly on the phone about this possibility. I mean seriously....3 years and not one freaking doctor mentioned this? This is where I kinda lost it folks. I won't go into all my symptoms but let's just say that the newest symptom since March was pelvic pain at the level 10 scale with the giant frowny face 24hrs a day/7days a week. The specialist doctor I was in touch with kept saying, "just give this birth control another month sweetie and you'll feel all better."  Bullshit. I was getting worse by the day. To the point of it affecting everything in my life. All I could do was sleep. Because that's what your body does when its in THAT much pain. It shuts down. I was prescribed prescription pain meds...none worked. Like none. (Oxycodone is most recent one..and that didn't touch the pain) So of course I started gaining weight. I was exercising, because that felt good, but evidently not as much as needed to keep my weight down. So that got me down. 10 pounds up in a few months is a red flag for me. And for my new doctor. BTW this is me when I was healthy and happy and running my first 13.1.....I am pretty sure a few months after this is when I started getting sick. This was in 2011.

So I found out last week I was having this surgery...needless to say I was a nervous wreck. I mean so many what if's right? What if the pain is a giant tumor that was gonna kill me in a month? My head goes to those places...it does people. Yesterday my hubby and Daddy took me to the Outpatient Center and waited with me. I am not gonna lie. I was so scared. But as I was sitting in my recliner with warm blankets waiting for my surgery I hear Dr Kale coming in and all the nurses doing "hooray's" and "Oh my gosh Dr Kale we love seeing you in here." on and on.....so obviously this doctor is loved. Because the place was all but pulling out the pom-poms for her arrival! I calmed down a smidge at this point. I was in good hands. All the nurses were super kind and gentle too. Of course being wheeled into the OR I about lost it. And they could tell. I tell ya doctors and nurses are little slices of angels. They calmed me and got me prepped with ease. And just like that I was in recovery. I had what's called a diagnostic laparoscopic surgery. Turns out the only way to diagnose endometriosis is to go into your body like this. Kinda invasive right? Alien like. I remember Dr. Kale's sweet voice while headed to recovery say, "Sweetie I found it....it's endometriosis. We are going to get you better." And then my went lights out for another hour.  When they brought Billy and my Dad back I could tell from Billy's face how relieved and happy he was. He too went to dark places....

So today I am resting...well trying to. I wanted to start video taping my new e-course. My abdomen is so sore. She only peeked around, didn't take anything or mess with anything.  But it still hurts. In a nutshell, endometriosis is a disorder in which the tissue that normally grow inside your uterus grows on the outside. And since it has no way to escape, builds and attaches to places which causes the pain. In my case it has obviously attached to places that have given me GI issues. So 3 years ago when I had the extreme GI issues, this was the root. And now the extreme pelvic pain. And the chronic fatigue. And the candida. And the bladder issues. It's ALL FREAKING related. To this. To this.....I just can hardly breath I get so mad. Mad that I didn't push the doctors for better answers. I guess since I had kids it wasn't a thought in the doctors minds...they just kept pushing more birth control changes for the pelvic pain. And honestly the changes would work about a year then I'd have to go in again. But this last time....oh man since March has been a whirlwind.

So I am on the road to recovery. It's not going to be easy. There is no cure for this. There are treatments, one of which I refuse, one we are going to try because I refuse the radical treatment. My doctor is kinda with me on the radical treatment so that's good. We meet this week to start treatment. I am really looking forward to healing and getting back to myself again!! And I tell you folks...I wish I'd been more pro-active in my testing and questioned why the doctors did what they did. I will be much more aware with my daughter if she starts having issues. No one should go through what I have. No one. Dr. Kale is my hero right now. Safe to say my husband and children's too. They are ready to have their Momma back.

Well...I am off to eat and then sleep. Like I said, pain meds don't really work on me. Weirdo right? Maybe I should locate the liquor?

8 comments:

Melissa said...

So sorry you have suffered so much. But having a diagnosis is the first step! Praying for a quick recovery, surrounded by everyone you love and lots of messy COLOR. ❤️

apinktractor said...

So sorry! I wish I had known this. I was diagnosed with severe E. I was dx the same way. I went for the extreme and had a complete hysterectomy and it was the best for me, it had even wrapped itself around my bowels! When the dr saw me after surgery he said he didnt know how I had so much in so many places. Glad she found it and you are on your way to feeling better!!!!

Melissa I. said...

Can I just say HALLELUJAH and AMEN here? I am SO GLAD you have a new doctor that took the best care of you! Here's to being on the road to feeling better! No, there's no cure, but it sounds like you have a doc that will make sure you feel as good as possible!

Jill Cooper said...

I'm praying for you and am so glad you found an answer. Hope you feel better soon.

Isabel said...

So glad you are on the road to recovery. And Thank You for sharing . I too have been dealing with severe pain in the pelvic and other crazy symptoms. I have had CT's and ultra sounds and all kinds < no GI stuff yet . But I asked if it could be that too , but so far it is my menopause and crazy hormones , our next step if issues continue will be the laproscopy surgery to look deeper. My pain is more severe during cycles. I am glad you shared , so many do not know about all this or too embarrassed to ask anyone,I am learning to ask friends and talk more about our female issues . Sending you hugs and a speedy recovery :)

KrissyB said...

Jenni, I'm so happy you finally found that awesome doctor, and I hope you start feeling a little better each day now. I love reading your blog. Thank you for sharing what you've been going through. It might help some other women out there! Take care.

Beth S Macre said...

Glad you got some answers! I went through this too...after having a partial hysterectomy! The endo had wrapped around the nerve going down my leg. It was terrible. Pain meds didn't touch the pain. Hope you Get well soon!

Christine said...

Oh, Jenni....I am so glad youfound a Dr who would listen to you....happy you are on the road to recovery ...speedy healing !
Hug, Christine\

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